Table 4 Summary of the Interview Topic Guide
Topic heading | Interviewer prompts |
|---|---|
Nature of the study | Consent and confidentiality procedures: research aims |
Personal information about informant | Demographics: household composition: family networks: length of time in UK: languages used. |
Understandings about epilepsy | Diagnosis: beliefs about cause: impact on life: other health problems: knowledge of any other persons with epilepsy |
Impact on lifestyle and relationships | Reactions of others – family/job/community: impact on what you can do: impact on mood: sources of support |
Understandings about seizures | Frequency: severity: changes over time: triggers for seizures: reactions of others. |
Experience of treatment provision | Language problems: medications: who would/do you go to for help: use of non-western therapies: satisfaction with care received. |
Attitudes to the future | Beliefs about cure and control: ways to make things better. |